| Ablepharon Macrostomia Syndrome
A personal site with information and links about this disease. |
| CajunHeart
Kim Bourg describes her life with the condition, and suggests strategies for coping with it in oneself or others. Includes details of symptoms and diagnosis. |
| Friedreich Ataxia Research Association
Summarises recent progress in ataxia research and the search for better treatment. |
| Friedreich's Ataxia and I
The author was diagnosed with Friedreich's Ataxia when eight years old. Read about the trials and triumphs. |
| Friedreich's Ataxia Fact Sheet
A comprehensive resources guide and fact sheet compiled by NINDS, the National Institute of Neurological Disorders and Stroke. |
| Friedreich's Ataxia Parents Group
With advice for new parents on the disease, and on how the parent might better cope emotionally. |
| Friedreich's Ataxia Research Alliance
Non-profit organization dedicated to the pursuit of scientific research leading to treatments and a cure. |
| Friedreichs Ataxia Society Ireland
Voluntary organisation providing support to anyone affected by genetic ataxias. Includes events calendar, membership details, and information on accessibility issues. |
| GeneClinics: Friedreich Ataxia
An in depth look at this disorder. Includes a summary, diagnosing, molecular genetic testing, clinical description and management. |
| Matt's Mansion
Describes his life with the condition, and his travels in a wheelchair. Includes information for any disabled person considering foreign travel. |
